• Business
  • Life
  • Celebrity
  • Sport
  • Blog
  • Auto
  • Tech
Stories from SWNS
Advertisement
  • Home
  • News
    Living The Fantasy: An Interview With The Serpent Calls Author Christopher Bramley

    Living The Fantasy: An Interview With The Serpent Calls Author Christopher Bramley

    Sharp As A Razor: An Interview With Atheist Author Harry Margulies

    Sharp As A Razor: An Interview With Atheist Author Harry Margulies

    Karim Tahseen Khayat: Seeds Training Services and Digital Services

    Dig into Temporarily Insane by Carl Borgen

    Dig into Temporarily Insane by Carl Borgen

    From HID to LED

    From HID to LED

    Dying woman granted final wish to be reunited with her beloved horse and pet dogs one last time

    Dying woman granted final wish to be reunited with her beloved horse and pet dogs one last time

    Trending Tags

    • Trump Inauguration
    • United Stated
    • White House
    • Market Stories
    • Election Results
  • Business
  • Life
    • Celebrity
  • Tech
    Artificial Intelligence and Online Casino Games

    Artificial Intelligence and Online Casino Games

    What are the Latest Digital Marketing Trends?

    What are the Latest Digital Marketing Trends?

    Improve Your Financial Prospects With a Forex Trading Course

    Improve Your Financial Prospects With a Forex Trading Course

    Adsterra Malware Protection: How Does Adware Work?

    Adsterra Malware Protection: How Does Adware Work?

    How to Sell Your Online Store for Maximum Profit

    How to Sell Your Online Store for Maximum Profit

    From HID to LED

    From HID to LED

    Trending Tags

    • Nintendo Switch
    • CES 2017
    • Playstation 4 Pro
    • Mark Zuckerberg
  • Review

    The Legend of Zelda: Breath of the Wild gameplay on the Nintendo Switch

    Shadow Tactics: Blades of the Shogun Review

    macOS Sierra review: Mac users get a modest update this year

    Hands on: Samsung Galaxy A5 2017 review

    The Last Guardian Playstation 4 Game review

    Intel Core i7-7700K ‘Kaby Lake’ review

No Result
View All Result
  • Home
  • News
    Living The Fantasy: An Interview With The Serpent Calls Author Christopher Bramley

    Living The Fantasy: An Interview With The Serpent Calls Author Christopher Bramley

    Sharp As A Razor: An Interview With Atheist Author Harry Margulies

    Sharp As A Razor: An Interview With Atheist Author Harry Margulies

    Karim Tahseen Khayat: Seeds Training Services and Digital Services

    Dig into Temporarily Insane by Carl Borgen

    Dig into Temporarily Insane by Carl Borgen

    From HID to LED

    From HID to LED

    Dying woman granted final wish to be reunited with her beloved horse and pet dogs one last time

    Dying woman granted final wish to be reunited with her beloved horse and pet dogs one last time

    Trending Tags

    • Trump Inauguration
    • United Stated
    • White House
    • Market Stories
    • Election Results
  • Business
  • Life
    • Celebrity
  • Tech
    Artificial Intelligence and Online Casino Games

    Artificial Intelligence and Online Casino Games

    What are the Latest Digital Marketing Trends?

    What are the Latest Digital Marketing Trends?

    Improve Your Financial Prospects With a Forex Trading Course

    Improve Your Financial Prospects With a Forex Trading Course

    Adsterra Malware Protection: How Does Adware Work?

    Adsterra Malware Protection: How Does Adware Work?

    How to Sell Your Online Store for Maximum Profit

    How to Sell Your Online Store for Maximum Profit

    From HID to LED

    From HID to LED

    Trending Tags

    • Nintendo Switch
    • CES 2017
    • Playstation 4 Pro
    • Mark Zuckerberg
  • Review

    The Legend of Zelda: Breath of the Wild gameplay on the Nintendo Switch

    Shadow Tactics: Blades of the Shogun Review

    macOS Sierra review: Mac users get a modest update this year

    Hands on: Samsung Galaxy A5 2017 review

    The Last Guardian Playstation 4 Game review

    Intel Core i7-7700K ‘Kaby Lake’ review

No Result
View All Result
Stories from SWNS
No Result
View All Result
Home News

Butterfly boy – Two-year-old boy with a genetic condition nicknamed the Butterfly Disease has such delicate skin that he can’t wear shoes

by
May 27, 2015
in News
0
Butterfly boy – Two-year-old boy with a genetic condition nicknamed the Butterfly Disease has such delicate skin that he can’t wear shoes

(Newsteam / SWNS)

0
SHARES
26
VIEWS
Share on FacebookShare on Twitter

A two-year-old boy with a rare genetic condition nicknamed the Butterfly Disease has such delicate skin that he can’t even wear a pair of SHOES.

Brave Jackson Rochford is left with painful blisters and his fragile flesh tears whenever he changes clothes or feels the slighest touch.

The tot can’t wear jeans or any rough materials because they make his skin peel and chafe.

And his condition is so bad that he can’t wear any shoes so has to be carried by his mum Kerry, 34, whenever they go outside.

Little Jackson suffers from the rare genetic condition epidermolysis bullosa (EB) which affects just one in 14,000 people in the UK.

Patients are known as “Butterfly children” because of their fragile skin and there is currently no cure with most sufferers having a life expectancy of just 30 and most victims dying of skin cancer.

Kerry Rochford (34) with her son Jackson (2) and daughter Lily-Rose (11) (Newsteam / SWNS)
Kerry Rochford (34) with her son Jackson (2) and daughter Lily-Rose (11) (Newsteam / SWNS)

Yesterday (Wed), Jackson’s mum Kerry told how she often gets funny looks and comments from strangers in public who notice the tot’s sores and see he hasn’t got any shoes on.

The single mum-of-seven said: “People do stare, especially in cold weather when Jackson doesn’t have any shoes on. They say his skin is as fragile as a butterfly’s.

“I get a lot of comments. When people see him without shoes I hear them say things like: ‘You’d think his mother would put some shoes on his feet, it’s freezing out’.

“I feel like turning round and telling them there’s a good reason for that, but I just smile sweetly back at them. They don’t understand.”

(Newsteam / SWNS)
(Newsteam / SWNS)

Kerry also wants more to be done to raise awareness about EB because she feels most people have no idea about the condition and what it’s like to live with it day to day.

She added: “If a child who doesn’t have the condition falls over, they’re fine. But Jackson’s skin is so fragile and it tears off. It’s like tracing paper. If he bumps into something he comes out in a great big blister.

“When I take him outside, I dress him in soft cotton and put a lot of padding inside his clothes. I have to carry him everywhere and shoes are a total no-go.

“He loses toe nails easily and he can’t have everyday plasters because they peel his skin.

“He also sees a specialist dentist at Birmingham Children’s Hospital because his condition affects his gums and his mouth bleeds each time he cleans his teeth which is a painful experience for him.

“I dread to think about him starting school. I have nightmares about it. Even holding a pencil will give him blisters. I don’t know how we’re going to manage that. I don’t want to think about it right now.

“One time I took him to A and E because his toes were infected and the nurses and doctors didn’t know what EB was and they asked us how it should be treated. They didn’t even have the correct dressings.”

Jackson’s sister Lily-Rose, 11, has now written a song about her brother to try and raise awareness about the rare condition.

Jackson's skin once it has blistered (Newsteam / SWNS)
Jackson’s skin once it has blistered (Newsteam / SWNS)

The schoolgirl said: “What he’s got isn’t nice. People stare and think something bad has happened and when they see him with no shoes they think my mum is a bad mum, but I want to show them she’s not.

“I love to sing. It’s my favourite hobby. I sing about my brother’s condition and how I hate it when I see him cry. I also sing about nice things, like how he dances.

“When we go to playgrounds I always make sure the other kids don’t knock him over. And I make sure he’s safe on his bike.”

Proud mum Kerry added: “All my children have been really good but Lily-Rose just wants to make everybody aware of Jackson’s condition. She Googles it and, although she reads all about the worst-case scenarios, she’s really positive.

“Lily-Rose adores him and will spend hours looking after him.

“I’m massively proud of her, she’s done amazingly well. It’s been hard for her losing her dad and shortly after that we found out Jackson had this genetic illness.

“She said we needed to tell people about it because she’s tired of people staring at her brother and judging me.”

* Only 50 in a million children are diagnosed with EB at birth. It can be passed on through genes or can occur spontaneously at conception.

There are three main types of the disease – EB Simplex, Dystrophic EB and Junctional EB – and more than 30 subtypes, all with varying degrees of severity.

EB charity DEBRA estimates there are currently 5,000 people living with the disease across the world.

In the most serious cases, patient life-expectancy can be as low as 0-6 years but other sufferers can live for a healthy life-span and there is currently no cure.

Previous Post

Window leaner – Shocking pictures from Scotland show window cleaner balancing on a narrow ledge with NO safety equipment

Next Post

Four-bed home overlooking 18th hole at the home of golf – St Andrews – sells for £2m in Scotland’s biggest sale this year

Next Post
Four-bed home overlooking 18th hole at the home of golf – St Andrews – sells for £2m in Scotland’s biggest sale this year

Four-bed home overlooking 18th hole at the home of golf - St Andrews - sells for £2m in Scotland's biggest sale this year

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

Stay Connected test

  • 111 Followers
  • 60k Followers
  • 168k Subscribers
  • 23.5k Followers
  • 99 Subscribers
  • Trending
  • Comments
  • Latest
Women love cheesy chat up lines, a study has revealed

Top 20 cheesy chat-up lines ladies really love

March 5, 2014
The top ten most well-known bingo phrases

The top ten most well-known bingo phrases

January 21, 2014
The horses thunder towards a jump at the Grand National

Amazing racehorse names which never made it

April 23, 2014
HGH Injections Brands: Which Ones Are Best?

HGH Injections Brands: Which Ones Are Best?

January 14, 2019
Chris Fear, 33, outside the Coral betting shop which is refusing to pay out on his 485/1 winning bet

Boycott Coral! Bookmaker faces protest after refusing to pay out on a football fan’s 485/1 bet

184
Women love cheesy chat up lines, a study has revealed

Top 20 cheesy chat-up lines ladies really love

147
Women feel invisible to the opposite sex at the age of 51, researchers found

Women begin feeling invisible to men ‘when they turn 51’

138
UKIP candidate claims Jews murdered each other in the Holocaust in masterplan to create State of Israel

UKIP candidate claims Jews murdered each other in the Holocaust in masterplan to create State of Israel

105
Living and Working in a Small Canadian Town Like Banff

Living and Working in a Small Canadian Town Like Banff

May 13, 2022
Top 5 risks of addressable media advertising

Top 5 risks of addressable media advertising

May 6, 2022
The top 5 UK shopping centres with the highest footfall (and how this can help your business)

The top 5 UK shopping centres with the highest footfall (and how this can help your business)

May 4, 2022
How to build customer relationships and increase loyalty

How to build customer relationships and increase loyalty

May 4, 2022

Recent News

Living and Working in a Small Canadian Town Like Banff

Living and Working in a Small Canadian Town Like Banff

May 13, 2022
Top 5 risks of addressable media advertising

Top 5 risks of addressable media advertising

May 6, 2022
The top 5 UK shopping centres with the highest footfall (and how this can help your business)

The top 5 UK shopping centres with the highest footfall (and how this can help your business)

May 4, 2022
How to build customer relationships and increase loyalty

How to build customer relationships and increase loyalty

May 4, 2022
SWNS

SWNS all rights reserved. Copyright 2020

Follow Us

Browse by Category

  • Auto
  • Blog
  • Business
  • Celebrity
  • Gaming
  • Life
  • Lifestyle
  • News
  • Pictures
  • Property
  • Review
  • Sport
  • SWNS
  • Tech
  • Travel
  • Uncategorized

Recent News

Living and Working in a Small Canadian Town Like Banff

Living and Working in a Small Canadian Town Like Banff

May 13, 2022
Top 5 risks of addressable media advertising

Top 5 risks of addressable media advertising

May 6, 2022
  • About
  • Advertise
  • Privacy & Policy
  • Contact

Real Fix is a trading style of South West News Service Limited.
Copyright © 2020 South West News Service Limited.

No Result
View All Result
  • Business
  • Life
  • Celebrity
  • Sport
  • Blog
  • Auto
  • Tech

Real Fix is a trading style of South West News Service Limited.
Copyright © 2020 South West News Service Limited.