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Kimberlee Provan, 44, from Blackpool struggles to do every day tasks such as walking, eating, and even chatting with friends on the phone because of a rare neurological condition that causes her skull to slip from her skull. See Ross Parry copy RPYRARE : A mum has a rare disorder which feels like having her head trapped in a vice – after her brain began slipping out of her SKULL. Kimberlee Provan, 44, struggles to do every day tasks such as walking, eating, and even chatting with friends on the phone because of her neurological condition. Mum-of-two Kimberlee went from a legal aid worker to only being able to sit upright for four hours a day since being diagnosed with the life-limiting illness in December 2013 – which almost paralysed her. Chiari Malformation affects just one in every 1,500 people, and causes the brain to slip out of the skull and push down on the spinal cord, resulting in severe neck pain, balance problems, muscle weakness, and hearing loss.

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